A Diary Note on Diet
I
have lived with Crohn’s Disease for over eleven years. During this time I have
noticed there are a number of potentially sensitive issues when discussing
Crohn’s Disease and Ulcerative Colitis, the two main forms of Inflammatory
Bowel Disease. One of these sensitive issues is diet.
A
number of internet websites, newspapers and other media sources discuss the
connection between diet and health conditions. Some websites claim that
‘unhealthy diets’ are the main cause or sometimes the only cause for
Inflammatory Bowel Disease. Then there are others which list ‘safe food and
drink’ which those impacted can consume, and further still comment on food that
can ‘cure’ the disease. This information can be quite dangerous as at present
there is no definitive cause of or cure for the serious and incurable
autoimmune diseases, Crohn’s Disease and Ulcerative Colitis.
In
this article ‘A Diary Note on Diet’ I want to make a plea to all you wonderful
people with Inflammatory Bowel Disease to suggest that only you truly know your
own body and therefore it is up to you to have the final choice of what kind of
diet you have. Each case of Inflammatory Bowel Disease is different so part of
your story with the condition is different too; this includes diet.
Reading
your experiences on support pages I have learnt that each person is different.
For some eating fish will be perfectly fine while for others eating raw
vegetables due to their fibre content will set off symptoms such as abdominal
pain and diarrhoea. Therefore ‘diet’ for those with Crohn’s Disease and
Ulcerative Colitis should be treated on an individual case by case basis rather
than all those individuals to be grouped together under one heading.
For
me eating ‘plain foods’ such as chicken, rice and pasta are less likely to
bring on symptoms closely associated with my Crohn’s Disease than those of
spicy foods. In some cases chicken, rice and pasta form what is known as ‘the
white diet’ which is often suggested by doctors for patients to have after a
flare-up or when introducing food again after a liquid diet to rest the bowel.
Nevertheless it is important to remember that you are the person living with
your body each day so you will have firm knowledge of what food is right for
you alone.
I
am sure many of you, like me, have been offered advice on your food intake. I
remember last year at a party I wanted to have some bread and a lady there
remarked ‘Do you think you should be eating that?’ I believe she had good
intentions and often most people in cases like this do, so I politely thanked
her before making my decision based on past experiences that bread does not
usually impact my Crohn’s Disease. Comments like these can be frustrating but
intentions are important. Looking back the lady could have phrased her question
to say ‘What foods are right for you based on your experiences so we can
provide them for you?’ Hopefully with more awareness of the connection between
diet and Inflammatory Bowel Disease those few will be less judgemental and more
understanding.
My
aim for this diary note is not to bash those people who make generalisations
about diet and Inflammatory Bowel Disease. Instead I would like to think that
those living with Crohn’s Disease and Ulcerative Colitis continue on eating and
drinking whatever they feel comfortable with without feeling they are being
judged by their diet. Thank you for reading and I hope you all have a brilliant
week.
‘Diet’ for those with Crohn’s Disease and Ulcerative Colitis should be treated on an individual case by case basis...Copyright © 1998- National Cancer Institute. All rights reserved. |
Take care you wonderful people.
ReplyDeleteTo avoid any copyright issues here is the full attribution for National Cancer Institute's photograph:
National Cancer Institute (1988) Food. [Online] Available At:
https://upload.wikimedia.org/wikipedia/commons/6/6d/Good_Food_Display_-_NCI_Visuals_Online.jpg
[Accessed: 30th August 2015].
I was diagnosed with Crohn's Disease just over 20 years ago.
ReplyDeleteI HATE when people continue to suggest I try XYZ to "cure" my Crohn's Disease. 1) There's not a cure for Crohn's, although some people can enter into remission for many years 2) Most of the diet suggestions are things I tried many years ago while seeing a nutritionist 3) Not a single person who has made a suggestion so far actually has a medical degree or even any sort of health/nutrition license.
Sometimes the comments are well-meaning, but frankly, they're often condescending.
Thanks very much for commenting Brita. You are absolutely right, the best person to give advice for your Crohn's Disease is yourself as you are the only true person who knows what experiences you are going through, and therefore know what foods you can or cannot manage to eat. I hope you enjoy the upcoming articles on Crohn's Disease and Ulcerative Colitis.
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